Turkish Version of Hand-Use-at-Home Questionnaire

Marmara University

Status: Completed

Conditions: Cerebral Palsy; Brachial Plexus Palsy

Treatments: Behavioral: Hand-Use-at-Home Questionnaire (HUH); Behavioral: Children's Hand-Use Experience Questionnaire (CHEQ); Behavioral: Pediatric Outcome Data Collection Instrument (PODCI)

Study type: Observational

Funder types: Other

Identifiers

NCT04243590

09.2018.712

Details and patient eligibility

About

To investigate the validity and reliability of the Turkish Version of parent-rated Hand-Use-at- Home questionnaire (HUH) in children with neonatal brachial plexus palsy or unilateral cerebral palsy.

Full description

Cerebral Palsy (CP) is defined as a permanent but non-progressive disorder group that affects the developing fetal or infantile brain, leading to impairment in movement and posture, thereby limiting physical activity and participation. The prevalence of CP in society is around 0.21%. In a study conducted in Turkey, this ratio of 4.4 / 1000 live births has been reported. Motor disorders in CP often are accompanied by sensory, perceptual, cognitive, communicative and behavioral problems and secondary musculoskeletal problems.

Obstetric brachial plexus (OBP) injury is a common peripheral nerve injury in children. Its incidence is reported between 0.42 and 5.1 per 1000 live births. As the primary mechanism of injury, it is accepted that traction or compression of all or part of the brachial plexus.

In these patients, weakness in the upper extremity, long-term contractures, and difficulties in the use of the extremities occurs due to the damage of nerves. In both diseases, patients have difficulty in bimanual activities.

Many treatment methods focus on increasing the use of upper extremities of patients and ensuring their independence in daily life activities. There are many methods for evaluating the hand use performance of patients and the effectiveness of different treatment methods. However, these clinical evaluation methods often do not reflect the patient's performance at home, at school, in their daily living environments.

The "Hand Use at Home (HUH)" questionnaire, which was created to be evaluated by parents, was developed in 2017 for measuring and evaluating the spontaneous use time of unilateral paretic children aged 3-10 in the affected hand and arm daily life activities.

The validity and reliability of the questionnaire were determined in children with obstetric brachial plexus paralysis and unilateral SP.

The purpose of this study; The translation of the HUH questionnaire into Turkish is to investigate its cultural adaptation, validity, and test-retest reliability.

Enrollment: 67 patients

Sex: All

Ages: 3 to 10 years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• Confirmed diagnosis of unilateral cerebral palsy or obstetric brachial plexus palsy
• Age between 3 - 10
• Volunteer to study

Exclusion criteria

• Having a visual disorder
• History of botulinum toxin injection and surgery for upper extremity and hand in the last 6 months.
• Having robotic rehabilitation or intensive treatments such as constraint-induced movement therapy to increase upper extremity use in the last 6 months.

Trial design

67 participants in 2 patient groups

Neonatal brachial plexus palsy

Description:

25 patients will be included. The level of the brachial plexus lesion will be recorded. Parents of all patients were asked to fill in the Turkish version of the "Hand-at-Home Questionnaire" and in addition, the upper extremity section of the Pediatric Outcomes Data Collection Instrument (PODCI) in patients with OBP.

Treatment:

Behavioral: Pediatric Outcome Data Collection Instrument (PODCI)

Behavioral: Hand-Use-at-Home Questionnaire (HUH)

Unilateral cerebral palsy

Description:

25 patients will be included. The level of "Manual Ability Classification System (MACS)" will be recorded. Parents of all patients were asked to fill out the Turkish version of the "Hand-at-Home Questionnaire at Home", as well as the "Children's Hand-Use Experience Questionnaire (CHEQ)" in patients with CP.

Treatment:

Behavioral: Children's Hand-Use Experience Questionnaire (CHEQ)

Behavioral: Hand-Use-at-Home Questionnaire (HUH)