Turkish Version of The Measure of Processes of Care (MPOC)

Hacettepe University

Status: Unknown

Conditions: Traumatic Brain Injury; Autism Spectrum Disorder; Down Syndrome; Disability, Developmental; Cerebral Palsy; Muscular Dystrophies; Disability Physical

Treatments: Other: Participation

Study type: Observational

Funder types: Other

Identifiers

NCT03508583

46418926

Details and patient eligibility

About

Family-centred care (FCS) is considered the best practice in providing rehabilitation to children with disabilities and special needs. Family-centred care has been described as a partnership approach to healthcare decision making. As a philosophy of healthcare, today many multidisciplinary healthcare facilities have organized their services according to a family-centred approach. TheMeasure of Processes of Care (MPOC) is the most widely used instrument to assess parents' self-reported experiences of family-centred behaviours of rehabilitation services providers. The aim of this study is to translate the scale to Turkish and to determine validity and reliability of The Measure of Processes of Care (MPOC 56- 20- SP)

Full description

The MPOC is a questionnaire designed to find out what parents of children with disabilities think of the services they and their children receive and how these services affect their psychosocial outcome. MPOC exists in two versions: the 56-item version was published in 1995 and the MPOC-20 in 2004. The20-item version was developed due to disadvantage of the longer version, because its completion can be very time consuming and the consequences of low respondent percentages . King and colleagues assert that the56-item MPOC is useful for research, while the MPOC-20 is better applied as a measure of parents' perceptions of the elements of FCS. The 20 items in the short version are distributed among the same five scales as in the MPOC-56. This ensures that the MPOC-56/20 captures aspects of care and services that have most importance for parents. The items are included in one of the following five scales:

1 Enabling and partnership; 2 Providing general information; 3 Providing specific information about the child; 4 Coordinated and comprehensive care; 5 Respectful and supportive care.

The Measure of Processes of Care for Service Providers (MPOC-SP) was developed to assess FCS from the perspective of professionals. The MPOC-SP has also been used in many different studies with different populations.

Enrollment: 300 estimated patients

Sex: All

Ages: 5 to 25 years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• To be diagnosed as disabilities and special needs
• Pediatric service providers who agree to participate to study

Exclusion criteria

• Children whose family didn't accept to participate to study

Trial design

300 participants in 1 patient group

Participation

Description:

Parents will complete the The Measure of Processes of Care 56- 20 (MPOC 56-20) questionary Service providers will complete The Measure of Processes of Care for Service Providers (MPOC-SP)

Treatment:

Other: Participation