Understanding Needs

Colorado State University (CSU)

Status: Completed

Conditions: Caregivers

Treatments: Other: Understanding Needs Survey

Study type: Interventional

Funder types: Other

Identifiers

NCT03118609

16-6969H

Details and patient eligibility

About

The "Understanding Needs" Project is designed to gain an understanding of the needs of informal caregivers. Researchers have designed a survey to highlight activities of daily living involved in the caregiving role, pain related to caregiver, and potential services desired. The initial phase of the study will consist of a focus group of informal caregivers to discuss current needs. The survey will then be refined based on knowledge gained from the focus group, and feedback from expert researchers. The refined survey will then be disseminated to caregivers throughout the country.

Please click on the following anonymous link to participate: https://chhscolostate.co1.qualtrics.com/jfe/form/SV_54j83BQSItMuoUB

Full description

The "Understanding Needs" Project highlights the needs of informal caregivers. An informal caregiver is defined as a person who regularly provides unpaid care to another adult. The survey will ask about pain intensity, pain interference, and relation of pain to the caregiving role. The survey will also address which activities the caregiver assists with, and activities now lacking since becoming a caregiver. One focus group will be completed to refine the contents of the survey prior to dissemination. The results will be analyzed by an occupational therapist, with a focus on how pain may connect to assistance with daily living activities provided to the care recipient. The needs of caregivers within the community will be compiled to inform future involvement in remediation of needs.

Enrollment: 69 patients

Sex: All

Ages: 18+ years old

Volunteers: Accepts Healthy Volunteers

Inclusion criteria

• At least 18 years old
• Informal caregivers (unpaid)
• have been a caregiver for > 6 months
• provide at least 8 hours of care/week
• able to read english

Exclusion criteria

• Less than 18 years old
• paid caregivers
• not able to read english
• Caregiver or care recipient has a terminal diagnosis with a life expectancy of less than one year

Trial design

Primary purpose: Supportive Care

Allocation: N/A

Interventional model: Single Group Assignment

Masking: None (Open label)

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69 participants in 1 patient group

Caregivers for "Understanding Needs"

Experimental group

Description:

5-8 informal caregiver participants in focus group will discuss current perceived needs. Up to 150 participants will complete the "Understanding Needs" survey

Treatment:

Other: Understanding Needs Survey