Underutilization of Hospice Care in Older Black Adults

University of Colorado Denver (CU Denver)

Status: Active, not recruiting

Conditions: Aging; Hospice Care; Attitude; Decision-Making; Knowledge; Decision Aid

Treatments: Other: IDECIDE-HOSPICE

Study type: Interventional

Funder types: Other

Identifiers

NCT06408090

23-0899

Details and patient eligibility

About

This study will sample older Black adults to test their knowledge and opinions of hospice.

Full description

Short stays in hospice strain the Medicare system. Black adults over age 65 are one of the fastest growing groups in the US. Despite greater disease burden than their White peers, older Black adults are less likely to enroll in hospice. Misconceptions about hospice and mistrust may contribute to this disparity. The research will seek to understand older Black adults' decision-making processes around hospice. The PtDA is a tool to assist in this decision-making process. The influence of this tool will be measured as well. The sample of older Black adults will represent the national population. The research will explore various subgroups, which previous research has been unable to address. This study will use four validated survey batteries. About 200 of the 400 participants will also review the decision aid. These adults will complete a second survey. About 20 of these adults will also complete an interview about the decision aid. Through the surveys and interviews, this research will explore barriers to hospice usage for older Black adults.

Enrollment: 400 patients

Sex: All

Ages: 65 to 99 years old

Volunteers: Accepts Healthy Volunteers

Inclusion criteria

• Identifies as Black or African American
• Can read and write English

Exclusion criteria

• Unable to read/write English
• Have a cognitive impairment that prevents them from providing informed consent

Trial design

Primary purpose: Health Services Research

Allocation: Randomized

Interventional model: Single Group Assignment

Masking: Double Blind

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400 participants in 3 patient groups

Intervention

Experimental group

Description:

200 participants reviewed the PtDA decision tool for education on hospice care and subsequently completed a second survey which was identical to the first.

Treatment:

Other: IDECIDE-HOSPICE

Interview

Other group

Description:

20 of the 200 Intervention participants will complete an interview using qualitative methods surrounding the topic of hospice care and the PtDA.

Treatment:

Other: IDECIDE-HOSPICE

Control

No Intervention group

Description:

200 of the 400 participants completed two identical surveys one month apart but did NOT review the PtDA decision tool prior to completing the second survey timepoint. Instead, these participants reviewed an 8-page attention control activity booklet. These participants are used as a control group in assessing any change in knowledge or opinions of hospice after the intervention group reviewed the PtDA.