UNTOLD Ovarian Cancer Unmet Needs Survey

University of Minnesota (UMN)

Status: Enrolling

Conditions: Ovarian Cancer

Study type: Observational

Funder types: Other; Other U.S. Federal agency

Identifiers

NCT07070726

2024LS181

1U48DP006876 (U.S. NIH Grant/Contract)

Details and patient eligibility

About

The goal of this study is to comprehensively measure ongoing concerns and unmet needs of individuals living with ovarian cancer. To accomplish this, the UNderstanding The experience of Ovarian cancer - Life after Diagnosis (UNTOLD) study will be conducted using a mixed-methods approach. Ovarian cancer survivors will be enrolled to participate in UNTOLD to complete a one-time survey regarding their experiences. Up to 40 survivors will be subsequently identified to complete a follow-up interview. To ensure these sample sizes, along with a representative sample, a combined recruitment strategy will be employed using the California Cancer Registry (population-based) and recruitment through ovarian cancer advocacy groups.

Enrollment: 2,000 estimated patients

Sex: Female

Ages: 18+ years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• Ability to read and write in English
• Diagnosed with ovarian cancer (ovarian, primary peritoneal, fallopian tube)

Exclusion criteria

Trial design

2,000 participants in 1 patient group

Ovarian Cancer Survivors

Description:

Ovarian cancer survivors participate in UNTOLD by completing a one-time survey regarding their experiences