Use of Online Communications to Support Patients and Their Families in the Hospice Unit

Pesach Shvartzman

Status: Unknown

Conditions: Palliative Care

Treatments: Other: psychosocial intervention

Study type: Interventional

Funder types: Other

Identifiers

NCT02483390

ק007/2015

Details and patient eligibility

About

The increasing awareness of the importance of palliative care has led, in Israel, to the 2005 Law for the Rights of Persons with Terminal Illness. Still, problems of accessibility to palliative care remain unresolved. The use of e-health services is likely to expand the ability of the medical, psychosocial and nursing staff to reach patients who are either living in the periphery, are unable to make clinic visits or whose family members are housebound in order to be caregivers. This exploratory research is designed to explore the issues, barriers and advantages of e-health care through the perspective of the palliative care staff members, the patients themselves and their caregiving family members.

Full description

This study is designed to test the applicability and suitability of e-health services (e.g. by use of SKYPE) to the psychosocial needs of patients and their families who are getting services through home hospice care. In addition, the attitudes of the hospice staff will be investigated to the use of e-health methods. The study will clarify selection criteria, referral pathways and barriers and/or supporting elements that will allow e-health services to be provided in a highly professional fashion. Up to 20 dyads of a patient and their primary caregiver will be recruited from those who are receiving services from the home hospice unit of the Kupat Holim Clalit (General Sick Fund) in the South of Israel.

Enrollment: 20 estimated patients

Sex: All

Ages: 18+ years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• Patient currently receiving care from the home hospice unit,
• over the age of 18,
• able to give informed consent,
• with a computer that can use SKYPE or a smartphone,
• speaking a language of the psychosocial staff person (Hebrew, English, Russian, Arabic).

Exclusion criteria

• Brain tumors,
• dementia,
• speech disturbance,
• refusal to participate,
• language other than the four spoken by psychosocial staff members,
• inability to use technology or lack of computer in the home.

Trial design

Primary purpose: Supportive Care

Allocation: Non-Randomized

Interventional model: Single Group Assignment

Masking: None (Open label)

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20 participants in 1 patient group

Intervention group: All dyads are in the intervention arm.

Experimental group

Treatment:

Other: psychosocial intervention