Validation of the Sickle Cell Disease Pain Burden Interview

Connecticut Children's Medical Center

Status: Completed

Conditions: Sickle Cell Disease; Pain

Study type: Observational

Funder types: Other

Identifiers

NCT00804362

08-093

Details and patient eligibility

About

The purpose of this study is to validate a brief survey tool, the SCD Pain Burden Interview (SCPBI), which can be used in the clinical and/or research settings to assess the impact of pain on children with sickle cell disease.

Enrollment: 131 patients

Sex: All

Ages: 7 to 21 years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• Documented sickle cell disease
• 7 years old or greater
• Primary caregiver present at the first visit for children < 18 years of age

Exclusion criteria

• Primary language spoken other than English
• Patient is in acute pain episode at time of initial visit