Viewpoints on the Social Representations and Rationale Concerning the Choices of Patients, Doctors and Caregivers With Regard to the Management of Patients With Non-resectable Metastatic Cancer of the Colon, Stomach, Bile Ducts, Rectum, Pancreas or Lung, or Gastrointestinal Neuroendocrine Tumours (EOLE)

University Hospital Center (CHU) Dijon Bourgogne

Status

Terminated

Conditions

Non-resectable Metastatic Cancer of the Lung

Non-resecable Metastatic Cancer of the Pancreas

Non-resectable Metastatic Cancer of the Bile Duct

Non-resectable Metastatic Cancer of Gastrointestinal Neuroendocrine Tumour

Non-resectable Metastatic Cancer of the Rectum

Non-resectable Metastatic Cancer of the Rectosigmoid Junction

Non-resectable Metastatic Cancer of the Colon

Non-resectable Metastatic Cancer of the Stomach

Treatments

Other: Questionnaires

Other: Interviews

Study type

Observational

Funder types

Other

Identifiers

NCT03328065

LEJEUNE FdF 2016

Details and patient eligibility

About

Reflexion on the therapeutic strategies to implement in patients at the end of life is advancing rapidly in France. However, beyond the choices presented to patients, sometimes even the decision to carry on, to limit or to stop treatments is also questioned. This decision is subjective; it is influenced by the patient's representation system (emotions, beliefs, values, practices, etc). In addition, even though he or she is the focus of the decision, the patient is not alone; other actors, accompanying the patient, play an important role in the final decision making. These actors, namely the doctors and close relatives, are also influenced in their decision making. This coexistence of representation systems may interfere with objective indicators that help in decision making (functional, clinical and biological) or with the knowledge acquired by doctors in their training and may complicate the decision-making process.

Enrollment

36 patients

Sex

All

Volunteers

Accepts Healthy Volunteers

Inclusion criteria

I- PATIENTS

men or women
who have been informed about the study
and who have provided verbal consent to take part in the study
able to understand written and spoken French
with non-resectable metastatic cancer of: the colon, or the rectosigmoid junction or the stomach or bile ducts or rectum or gastrointestinal neuroendocrine tumor or lung (not small-cell cancer) or pancreas
with a caregiver designated as the principal caregiver (family, friend, neighbour)
who has consented to the principal caregiver taking part in a qualitative interview
able to take part in an interview lasting roughly one hour

II- CAREGIVERS

men or women
who have been informed about the study
who have provided verbal consent to take part in the study
able to understand written and spoken French
able to follow an interview lasting roughly one hour

III-DOCTORS

men or women
who have been informed about the study
who have provided verbal consent to take part in the study
specialised in specific organ or oncologist prescriber

Exclusion criteria

I- PATIENTS

under guardianship or ward of court
with a severe handicap (neurological disease: Parkinson, Alzheimer, other dementia, multiple sclerosis, severe mental retardation etc.)

II- CAREGIVERS

under guardianship or ward of court,
with a severe handicap (neurological disease: Parkinson, Alzheimer, other dementia, multiple sclerosis...),
with severe mental retardation impairing ability to understand.