Voices: Messages of Wisdom and Hope in the Face of Illness

Mayo Clinic

Status: Enrolling

Conditions: Hematopoietic and Lymphatic System Neoplasm; Malignant Solid Neoplasm

Treatments: Other: Non-Interventional Study

Study type: Observational

Funder types: Other

Identifiers

NCT07381179

NCI-2026-00073 (Registry Identifier)

25-006417 (Other Identifier)

Details and patient eligibility

About

This study may help doctors determine where patients and caregivers may need more support and identify ways to maintain patient and caregiver dignity while undergoing treatment.

Full description

PRIMARY OBJECTIVE:

I. Change in patient dignity impact scale scores prior to and after completion of patient and caregiver recordings.

OUTLINE: This is an observational study.

Patients and their caregivers complete an interview and survey on study. Patients also have their medical records reviewed on study.

Enrollment: 40 estimated patients

Sex: All

Ages: 18+ years old

Volunteers: Accepts Healthy Volunteers

Inclusion criteria

• Age ≥ 18 years
• Diagnosis of chronic or progressive illness with a primary caregiver, should patient wish to involve one
• Willing and able to participate in a semi-structured recording lasting approximately 60 minutes. Dyad recordings conducted for participants who elect to involve a caregiver
• Willing and able to participate in a single follow-up recording. Dyad follow up recordings conducted for participants who elect to involve a caregiver

Exclusion criteria

• Uncontrolled and/or intercurrent illness which limits participation in study recording
• Vulnerable populations: persons lacking capacity for understanding participation in this study

Trial design

40 participants in 1 patient group

Observational

Description:

Patients and their caregivers complete an interview and survey on study. Patients also have their medical records reviewed on study.

Treatment:

Other: Non-Interventional Study