What is the Perceived Role of Risk in DOC Healthcare.

University of Nottingham

Status: Enrolling

Conditions: Disorders of Consciousness

Treatments: Other: Observation

Study type: Observational

Funder types: Other

Identifiers

NCT06647433

24051

Details and patient eligibility

About

Critical ethnography exploring how decisions are made on behalf of people in disorder of consciousness (DOC).

Prospective longitudinal case study design including observation, field interview and video reflexive ethnography.

Enrollment: 40 estimated patients

Sex: All

Ages: 18+ years old

Volunteers: Accepts Healthy Volunteers

Inclusion criteria

• People in a DOC:
• Working diagnosis of being in a DOC.
• Have an appropriate family member able to act as a consultee.
• Over 18 years of age.

Family members and healthcare workers:

• conversational English.
• able to give consent.
• over 18 years of age.
• Involved in decision making on behalf of a person in a DOC

Exclusion criteria

Person in a Disorder of Consciousness

• Not in a DOC, diagnosis uncertain, or appears to be emerging.
• Clinically unstable or approaching the end of their life.