YASU Research Registry: For Young Adults With Cancer

Young Adult Survivors United

Status: Terminated

Conditions: Breast Cancer; Melanoma; Sarcoma; Lymphoma; Cancer; Leukemia; Germ Cell Cancer; Colorectal Cancer

Study type: Observational

Funder types: Other

Identifiers

NCT06275854

22265 (Other Identifier)

Details and patient eligibility

About

The goal of this observational research registry is to learn about health, wellbeing, and needs of survivors of young adult cancer (diagnosed between the ages of 18 and 39). The main question[s] it aims to understand are:

• What are the levels of depression, anxiety, social support, and financial distress
• Determine effectiveness of YASU programming by measuring changes over time

With this registry, the investigators also plan to identify survivors who may be eligible for participation in future research studies pertaining to young adult cancer.

Participants will be asked to complete electronic surveys every 6 to 12 months during participation in the registry.

Full description

The study will be conducted online.

Enrollment: 192 patients

Sex: All

Ages: 18+ years old

Volunteers: No Healthy Volunteers

Inclusion criteria

1. Cancer diagnosis received between the ages of 18 and 39.
2. Able to speak and read English

Exclusion criteria

1. Inability to provide consent (such as neurological illness or mental incapacity)
2. Has not registered as a member of YASU

Trial design